Good-bye Giraffe bed |
Hello Crib! |
Working on a smile! |
We are going to miss Uncle Tristan and Grandma! |
These past few days have been great! Caelin got up to full
feeds of 20 mL/hr on Thursday and he has tolerated them well. Friday he was put
on 20 mL/hr with 26 calorie Elecare which was his goal. Since he tolerated the
volume and concentration he was switched back to breast milk this afternoon. Today
marks one week that Mommy has eliminated all soy and milk products from her
diet; it has been tough to do but it’s well worth it if it allows Cael to
consume and break it down. As long as he continues to tolerate the feeds the
next couple of days, the doctors plan to pull it back to NG! We are so proud of
Cael for finally getting to where the doctors wanted him to get. It took three
weeks but he is heading in the right direction! He still has not stopped retching
and vomiting, but he is doing it a lot less and they have no trend. They are
often unpredictable and without obvious cause. The cardiologist says that
unfortunately he may just be one of those babies who does it every so often and
should grow out of it.
Caelin’s breathing has also gotten better. He really only
gets noisy when he is really mad or right after he retches and vomits. We think
his voice is finally fully restored, too! He has been pretty vocal and when he
is mad, he can get really loud! lol
Thursday Caelin got his first hearing test. Two ladies from
audiology came in while he was sleeping and stuck wires behind his ears that
measure nerve responses to sounds played in his ear. Both ears passed! They
gave us a little magnet to track his hearing progress throughout his first year
of life. He has already mastered all four 0-3 month milestones AND two of the
3-6 month milestones. The first of the 3-6 months is “Looks for sounds with
eyes” and the second, “Responds to your voice even when you cannot be seen.” We
like to attribute this to us reading, talking, and singing to him so often
while he was in utero and constantly since he has been born.
Also on Thursday Caelin graduated from a Giraffe bed to a
crib! The nurse was just going to give him a new, clean Giraffe bed but Mommy
asked for a crib since he is growing and she said it was no problem. So he is loving
his new crib! Half of it has his Z-Flo mattress where he sleeps and the other
half has his Boppy pillow where he sits up and plays. We are able to hang his
music/projector toy and put some of his stuffed animals in there with him.
Mommy also created a little mobile of pictures above his head. He has been
working on smiling, sucking his thumb, and reaching for things in front of his
face. Just today when Mommy returned from dropping Grandma and Uncle Tristan
off at the airport, Mommy walked in and started talking to Cael. When he looked
over at her and finally made eye contact, his eyebrows raised, his eyes opened
wide, and he was trying to push out a smile. This melted Mommy’s heart!
One more cute detail- he is able to wear clothes now! Mommy
asked on Wednesday night if she could bring in some clothes for Cael (onesies,
t-shirts, and loose bottoms) and they said, “Of course!” This made us so excited!
He is restricted a little bit because of his IV, pulse oximeter, blood pressure
cuff, and leads but we are just happy he can wear something! So Friday he wore
his first real onesie (since his one month shirt had to be cut down the back
and just draped over him)! He honestly does not seem to mind wearing clothes
and he looks so gosh darn cute in them!
We continue to be so proud of our little guy and how far he
has come. We are incredibly happy that he is finally starting to triumph with
his feeding; he still has quite a bit more to accomplish with feeding before he
can come home but he can finally tolerate the volume which was the first step!
Mommy’s sense of hope and optimism has been reinforced with a fortune card from
Zoltar at The Pier in St. Petersburg. On Friday Mommy, Grandma, and Uncle
Tristan went down to The Pier and could not resist the Zoltar fortune-telling
machine as seen in Big. Mommy’s
fortune read, “The crystal gazer has wonderful things in store for you. A dear
one will return from a long trip and your whole life will be different. You
have a patient disposition and your patience is about to be rewarded. Despair
not I say for your days of despair will soon be over. Your calm spirit, and
your good sense will see you through all emergencies. You have many fiends,
particularly in the armed forces. They are loyal to you, and are glad of an
opportunity to be of ‘service’ to you.” All I can say is I hope there is truth
to this fortune and thank you to all of you who read his blog and support him.
No comments:
Post a Comment
We figured out how to adjust the settings so anyone can now make a comment! :)